Loren
health stuff, feel free to mute, just updating those who might be interested
Loren
eyyyyy turns out I have muscular dystrophy! the hospital got my DNA results back and then didn't bother to call me for 3 months lol
Loren
anyway it's a genetic thing so apparently I've had this my whole life and we just didn't know until now, good times
Loren
they also don't know if this has anything to do with the seizures or not, apparently the answer is "it could go either way" so, exciting 🌈✨
Loren
I'm using sarcastic emoji but I actually am mildly excited that my relatives have to stop telling me I'm just out of shape and need to exercise more and that'll make everything go away lmao
Loren
anyway the seizure stuff is not solved yet, trying different medications, but jesus christ you don't know how much of a weight it is off the shoulders to have some kind of official diagnosis
Solar
oh god I'm so glad you have some answers at least. though what the hell, not calling for 3 months?? hope your medications work out and the source of the seizures is sussed out /every hug
Loren
apparently there was a whole entire test I was supposed to come do that nobody told me about either, seems like some wires got crossed last time I was there lmao. my actual doctor is really nice and helpful so maybe paperwork got messed up somewhere
Loren
thank you very much though 💕
Loren
I'm gonna try to go back to tagging regularly when I hopefully get my meds right and stop having uhh seizure related anomalies lmao
Solar
not a fun diagnosis either but I hope the available treatment is effective :c
Loren
I'm just glad there's shit they can do about epilepsy and meds seem to be having a real effect
Loren
muscular dystrophy is a lot more dicey lol
Loren
also paradoxically grateful to be poor as fuck rn bc I'm seeing all these fancy specialists on the state's dime, which, thank god I don't have to pay for this on normal people insurance I can't even imagine
xue yang
physically fights your relatives
Loren
lmao the worst one was always my mom, who is mostly a really nice and helpful and supportive and understanding person but like
Solar
I'm glad your medications are helping and god, yeah, that you're covered rn
Loren
she's been a nurse for 30+ years so she thinks she knows everything lol...
Loren
Solar it is a lifesaver, very literally lol
Solar
yeah no fucking doubt.
Solar
but I really am so, so glad you're getting answers at least
Loren
you and me both god. thank you, it means a lot. 💜
Solar
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