[irl] so my kidneys are working at only 43% and I’m peeing out a ton of protein. The doctor as typical thought he could google EDS while I was in the room to “educate” me.

About how kidneys couldn’t cause pain unless they were super inflamed and stretching the membrane it’s inclosed in. So I told him “with all due respect you have the CAT scan so maybe actually look at it. “

“Oh wow they’re actually very large”

well there you go.

Typical tho. They took more blood and urine so we’ll see if it’s gotten any worse. If so that’s... really not good.

ugh im so sorry

did he say anything about treatment options?

if theyre that far off they should want to do something pretty damn quick

but yeah im sure your creatinine is super high which would explain some of the pain gah im sorry, kidney stuff sucks so much im glad you told him to run tests though, sometimes you just have to

If it’s the structure of my kidneys falling apart because of the EDS it doesn’t sound like there’s anything I can do about it.

We’ll see what this round of tests say.

Yeah the creatinine was like 1.48 and my protein was 100 when I went into the ER