I şĥĩp ĩţ
Day 3 of migraine. now it feels like pressure in addition to the throbbing. I was considering going to the ER but they would give me the same drugs I'm already taking... And for some reason I keep having hot flashes... guys I'm wearing shorts and cami pj's in the winter!
Prickly Android
Damn. That migraine just isn’t letting up.
I şĥĩp ĩţ
I took antiinflammatories in addition to the pain meds. we'll see...
Prickly Android
Here’s hoping.
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
ugh i've been in this spot too.
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
mine's been going since thursday and the meds my doc gave me are only marginally helping.
I şĥĩp ĩţ
the pain meds help but it keeps coming back
I şĥĩp ĩţ
but they're also narcotic and I don't want to get addicted
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
i am in the same exact boat
I şĥĩp ĩţ
not like I have enough for that to happen lol
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
and i hate taking narcotics
I şĥĩp ĩţ
you taking dilaudid/hydromorphone?
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
i have before, but not this time. my doc is trying me out on some migraine stuff
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
along with a butabital mix
I şĥĩp ĩţ
sumatriptain and the other triorains don't work on me
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
i can't take anti-inflammatories because i'm also on methotrexate
I şĥĩp ĩţ
I just g got my emgality injection too
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
i have some hydrocodone but i really try not to take it.
I şĥĩp ĩţ
oh
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
my doc offered me some oxy but i turned her down
I şĥĩp ĩţ
hydromorphone is stronger than both those. it's only 3 down from fentynol
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
she knows that dilauded is sometimes all that will work, but i figure-- yeah\
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
i've been on pain pumps for dilauded berore
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
*before
I şĥĩp ĩţ
it works, but after about 8 hours it comes back
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
yep
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
pain pumps and pain contracts, etc.
I şĥĩp ĩţ
unless I take another one, but I'm trying to get rid of it
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
but they fuck with my mental health so bad that i'd rather just be in pain sometimes
I şĥĩp ĩţ
jeez we are a mess
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
lol yep
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
it's not extended release, right? i've never heard of dilauded as an er
I şĥĩp ĩţ
I do have this headache hat that wraps ice around my head that helps
I şĥĩp ĩţ
no
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
ohhhhh those are soooo nice
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
i have one too
I şĥĩp ĩţ
I ordered another one so I can have one in the freezer and one out
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
yeah, that's always a good idea.
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
my docs think i might be going through a flare of my autoimmune disease which is no bueno
I şĥĩp ĩţ
Idek what's with the hotflashes
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
i get those too with narcotics
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
iirc it's the body's way of ensuring the meds get delivered quickly because heat tends to open the veins more
I şĥĩp ĩţ
I think mine is a release of buildup of stress from over the holidays with my cat and traveling
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
that's also a possibility
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
i spent most of my holidays in bed with headaches
I şĥĩp ĩţ
I dint have any autoimmune disorders
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
that's a really good thing. they suck
I şĥĩp ĩţ
I am still a hot mess but at least there's that
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
haha fist bumps in solidarity
I şĥĩp ĩţ
my kitty is cuddling with me at least
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
i have granulomatosis with polyangitis without renal involvement, but i'm always getting my kidney functions checked in case that changes
I şĥĩp ĩţ
I should probably check my bg. I only ate protein and no carbs for breakfast
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
yeah low bg can sometimes make headaches worse
I şĥĩp ĩţ
I'm going to a liver doctor Monday. first time but my liver enzymes are always off the chart elevated
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
yikes
I şĥĩp ĩţ
I don't even drink
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
but makes sense given what you have to take for pain management
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
my step-dad has a fatty liver as a genetic condition
I şĥĩp ĩţ
yeah they told me to stay away from pain meds but it was bad enough to make me cry
I şĥĩp ĩţ
I do too
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
no kidding
I şĥĩp ĩţ
so that might be it
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
it's the worst when you are like in so much pain that you're past the point of crying.
I şĥĩp ĩţ
my mom died of cirrosis but she drank a lot
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
that sucks, i'm so sorry 
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
my step-dad used to drink a lot, but had to stop because of his liver.
I şĥĩp ĩţ
just saying I could also have that
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
definitely somehting to look into
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
*something
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
going through the whole diagnositcs bit is so rough some times.
I şĥĩp ĩţ
why I'm going to hepatologist
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
just trying to figure out what's causing shit and every time something is ruled out it's like here we go again
I şĥĩp ĩţ
that might not be helping either
I şĥĩp ĩţ
exactly
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
it took docs 2 years to figure out i had an autoimmune disease the first time
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
i hardly remember much of that time because i was constantly on either pain pills or a pain pump.
I şĥĩp ĩţ
normally my migraines are caused by occipital neuralgia which is nerve pain and why the narcotics are the only thing that works. there's nothing to treat nerve pain
I şĥĩp ĩţ
damn
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
don't i know it. man i tried gabupenten and lyrica but lol
I şĥĩp ĩţ
I'm on gaba
I şĥĩp ĩţ
200mg twice a day
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
i hate that shit. huge horse pills
I şĥĩp ĩţ
mine are capsules
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
whaaaat
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
no fair
I şĥĩp ĩţ
lol
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
they suggested i grind mine up and put it in applesauce or smth
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
i was like too much effort i'll just swallow the fuckers
I şĥĩp ĩţ
also supposed to start a once a week shot for diabetes tomorrow after I see endocrinologist
I şĥĩp ĩţ
lol gross
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
oof
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
when they put me on high doses of prednisone, i have to do that
I şĥĩp ĩţ
so I have 2 Dr appointments
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
goodie! what fun! /sarcasm
I şĥĩp ĩţ
I'm allergic to prednisone lol
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
i mean... that's kinda a good thing but not.
I şĥĩp ĩţ
I might need a ride 'cuz I can't drive on narcotics
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
like it really works but the side-effects are really horrible
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
do you have a ride share program in the are?
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
here in spokane, we have the paratransit, and i use that when i know i have multiple appointments in one day or smth
I şĥĩp ĩţ
not that I know of but I can ask my partner
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
it's def worth looking into
I şĥĩp ĩţ
oh I have access but haven't taken it jn awhile
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
i didn't think i'd qualify at first because i'm still pretty mobile (most of the time), but my doc suggested it
I şĥĩp ĩţ
that paratransit
I şĥĩp ĩţ
I can drive now so haven't needed it
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
unfortunately, i can't, so it's either the bus, paratransit, or uber
I şĥĩp ĩţ
but I learned to drive so late in life
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
i learned at 16, but now i have i have PNES so no driving for me
I şĥĩp ĩţ
I can't bus. my anxiety and ptsd go haywire
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
i can totes understand that. i bet it's way more complicated in your area
I şĥĩp ĩţ
and I just dropped my phone on my face lol
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
lmao i've done that
I şĥĩp ĩţ
I wonder if I dint take any narco today if I can drive tomorrow?
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
you might be able to? but it depends on how your body metabolizes that stuff.
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
best answer: ask a doc/pharmacist
I şĥĩp ĩţ
bit if I have headache still probably not a good idea
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
yeah
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
in that case, i usually just arrange for a ride. less of a burden on the mind that way
I şĥĩp ĩţ
I think I have to call 2 days in advance iirc
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
nodnod. mine is 1 day in advance, but usually i end up having longer wait times in the office lobby when i do that
I şĥĩp ĩţ
they pick me up at my house
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
same. i mean like after the appointment, usually, when they pick me up again
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
or like... the other day, my appointment was at 12:15, but they picked me up at 11:15
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
(we also have a shortage of drivers right now, which doesn't help)
I şĥĩp ĩţ
oooh
I şĥĩp ĩţ
I'm gonna rest some more. nice talking with you! I hope you feel better soon
ᴘʀɪɴᴄᴇ ᴅɪᴄᴋʜᴇᴀᴅ
you too, dear 
I şĥĩp ĩţ
