Happy December! It's time for a new plurk, with updates (life, medical etc) and potential venting. Actually, guaranteed for just a moment-
GAY SHEEP
Happy December! It's time for a new plurk, with updates (life, medical etc) and potential venting. Actually, guaranteed for just a moment-
Happy December! It's time for a new plurk, with updates (life, medical etc) and potential venting. Actually, guaranteed for just a moment-
Leanne No
/plants her ass in here!
GAY SHEEP
I love it when making a grocery order for delivery, they go through and get everything and decide, right at delivery time, to cancel it 
GAY SHEEP
Got everything, save for two things, including the things they claimed were out of stock before cancelling everything
🔥ғɪʀᴇ ғɪsᴛ ᴀᴄᴇ🔥
What the fuck =\
GAY SHEEP
I had game so I didn't even look deeply for everything on my list. I really think someone just stopped their shift suddenly for some reason
GAY SHEEP
also I'm in a supportive community online for people with fibro, and while there can be insightful things that come up, there's always some people that make you shake your head
GAY SHEEP
not the harmless ones that some that don't know if their topic is suited for a poll or discussion. there's a small but loud group that are anti covid vax for a variety of reasons that aren't about having allergies to the ingredients
GAY SHEEP
someone just put up a poll, opening it up with how people get defensive when suggestions of treatments are being thrown, and asking of you've tried them all. the suggestions were sugar free, gluten free, yoga, acupuncture, or you didn't try everything
GAY SHEEP
mind, if you go sugar or gluten free and things really improve... you probably had something more that fibromyalgia going on
GAY SHEEP
acupuncture can get expensive, and isn't covered by insurance for the most part. for yoga, with the way this thing acts, it's safer to have an in person guide... also money
GAY SHEEP
with how little is understood and developed with this disorder/disease, only those with the privilege of steady and significant income can really explore the 'effective' stuff
GAY SHEEP
I'm just glad no one has come in and suggested praying and giving to God for things to get better
GAY SHEEP
oh, huh. I was looking at my past doctor appointment to cross reference something and it turns out that my urinalysis test is still pending. apparently they do that when there's trace luekocytes and low- what's in called again... urobilinogen
GAY SHEEP
well, we'll see what happens with all of that lmao imagine me having some liver disease when I don't drink or anything
GAY SHEEP
with non medical shit.... shit, I just miss people being able to come over and visit
GAY SHEEP
I'd say it didn't have to be an intense thing, but smiley's excitement and strength always makes it that for a while
GAY SHEEP
hey~ good news is that as of yesterday, the savella was approved. so that should be getting filled!
shinotenshi22
hooray!
GAY SHEEP
apparently they were setting up a patient assistance program to cover the medication costs
GAY SHEEP
note: even with something like goodrx, this medication costs over 480
GAY SHEEP
with the program, it'll cost nothing, or maybe a buck at most
GAY SHEEP
This is me right now for good things, but multiple things
This is me right now for good things, but multiple things
GAY SHEEP
Covid booster is a get! There was just enough of an opening, though still a wait to get done. But I did it
GAY SHEEP
Now with the Savella- It wasn't just a special program, but a specialty pharmacy that they handled it all through (which is probably why it took so long getting authorization- insurance was getting me set up)
GAY SHEEP
So they called and we set up a full delivery type thing. In less than a week, I'll have drugs
Leanne No
look at you go!!!
GAY SHEEP
These are definitely good things I needed handled
GAY SHEEP
been working on hydrating and getting rest. getting nauseated pretty easily, but that could be a number of things at this point and not the booster, given the way the last couple of months have been
GAY SHEEP
I think it's because I was having a weird pain flare anyway, but I'm getting hit. it's all aches and sleepiness
GAY SHEEP
so tired... but when I said I was and wanted to go back to sleep, everyone else fucked off leaving me to watch the dog
GAY SHEEP
I, uh... May've injured my shoulder. Smiley ran down the stairs by plowing through one of my legs (that knee is in killer pain) and caught myself by grabbing the bottom of the banister that goes upstairs
GAY SHEEP
I'm gonna have to hope someone is around when it's his bedtime, because after what he did to my knee, I'm not getting back upstairs
GAY SHEEP
................ glad to know that i can fall and call for help loudly, multiple times, and literally no one would do anything
GAY SHEEP
it took 15 minutes to pull myself up into a chair
GAY SHEEP
pain setting in faster than i thought it would
shinotenshi22
As i said in person, I'm so sorry again. I know that's inadequate in a lot of ways. I'll keep checking on you, and play fetch-monkey.
GAY SHEEP
might've stressed the shoulder more than I realized. no matter how I lay, the pain keeps me up
🔥ғɪʀᴇ ғɪsᴛ ᴀᴄᴇ🔥
Oh no ;;
GAY SHEEP
it's hard to explain, because it's ingrained in me to downplay levels of pain and such
GAY SHEEP
certain movements, including pulling my legs out from under blankets, cause a short period of intense levels
GAY SHEEP
there's a reason Lin is offering to be fetch monkey. though I'm stubborn and will probably get things myself tomorrow, despite pain and limitations (more things ingrained in me)
GAY SHEEP
body is still in 'something is messed up, so must rest and recover as much as possible' mode. similar when it's trying to kick something inside
GAY SHEEP
Savella is now in the house
GAY SHEEP
I can't wait to be more of a person in future days as it takes effect
🔥ғɪʀᴇ ғɪsᴛ ᴀᴄᴇ🔥
Nice!
GAY SHEEP
Dear lord, so much sneezing and nose blowing today. I mean, the latter's been going a couple days. Gotta love seasonal shifts
GAY SHEEP
The savella is steadily doing its thing, though my body is still achy and recovering from Smiley and the vaccinations
GAY SHEEP
the air pressure dropped a whole bunch with the rain today, so I've been sleeping or resting through most of it. being without the savella for months means it's not as easy as just picking it back up and things being great again
GAY SHEEP
a shame, but I'm not in any huge rush
GAY SHEEP
my torrid order also came in. loving it all for the most part. the snap on my coat came off immediately on once side, so I have to fix that...
GAY SHEEP
but I have a lovely holiday skull sleep cami that's flowy and long, and I took a risk with buying underwear. confirmed that I like high waisted thongs? they comfy
GAY SHEEP
I should fix that snap before forgetting about it... and before we have to go anywhere when it gets particularly cold
GAY SHEEP
oh, poor pup. he's crying in his sleep
GAY SHEEP
he's had a rough time with people being gone for a couple days. not everyone at the same time, but he was like this last night too
shinotenshi22
Poor baby...I didn't know. Of course, he also had accident in his crate, so that might be why the crying too
shinotenshi22
(his bed and blanket are in the washer, and his crate has been cleaned)
GAY SHEEP
I don't think he's gotten into the idea that making a mess in his crate is something to cry about. He hasn't before, similar to how he doesn't do that when trying to get let out for the bathroom
GAY SHEEP
Definitely getting there mentally, but the physical is just slow (because I have a few things that cause slow healing) so my sleeping is a bit erratic and messy
GAY SHEEP
I've been watching a Taiwanese show on netflix called 2 Fathers, which is just super wholesome and sweet.
GAY SHEEP
This dog just pounced and landed by hitting me right in the boob before anything else. dog
GAY SHEEP
also, man I'm worried about bry. he went to work Friday morning and still hasn't returned. the years I've been here, he wasn't gone this long aside from actual trips.
GAY SHEEP
I hope he remembers to get back for some kind of rest before the work week starts again
GAY SHEEP
mama love to the rescue in hopefully kicking a bug out the house.
GAY SHEEP
For tits sake... This dog needs to stop hurting mine
GAY SHEEP
Because I had a somewhat fuzzy sweater on, he bites and pulls at it. 2 guesses where
GAY SHEEP
........... What kind of monster decides that sending a SSI disability denial so it arrives immediately before christmas is a good idea?
GAY SHEEP
'see enclosed packet of your right to an alj hearing'.... y'all, there's no enclosed packet.
GAY SHEEP
I'm just gonna spend half this time crying, cuz I'm tired
GAY SHEEP
I've been dizzy for something like eight or so hours and a little after that started, I've been dealing with a nasty headache ><
GAY SHEEP
a lot of it is weather, but helping out and putting away most of the groceries makes things a bit worse
Leanne No
marimoneki neko
with all my med shit happening i didnt see this plurk until now (my timeline gets like 200 new plurks every ~36 hours and i havent been able to keep up)
marimoneki neko
i am so glad you got your savella. im gonna fuckin dropkick the ssa
GAY SHEEP
they really need to define what a 'substantial' amount of work is, because I don't think they understand what the word supplemental means
marimoneki neko
tbfh
marimoneki neko
it's something like "oh you can work enough to make $1,270/mo" which is both unlivable anyway and frankly hilarious
marimoneki neko
i cant believe they tried to suggest lore could work at a laundromat
marimoneki neko
every person involved in this shit is out of touch
shinotenshi22
...................................................... 
GAY SHEEP
even the guy that fixed my ingrown toenail knew more about fibromyalgia and said how out of date and touch the people in charge there are
GAY SHEEP
that's what happens when the people in charge look to literally retired 'experts' that haven't been involved with the studies and research in decades (he told me this is actually the case)
marimoneki neko
y u p
marimoneki neko
and making it all better, the pain specialist i saw all of once before 2021 exploded was like "i was on one of the panels briefly, and literally no person in any section speaks to other doctors who have seen you or sees any other examiner's notes"
marimoneki neko
so you literally have to explain everything to everyone
marimoneki neko
which like. what disabled person has the energy to do that
GAY SHEEP
the fact that the majority of disabled people with non injury conditions also have anxiety because of it doesn't help
marimoneki neko
yeah